Dillon loves spending time with his family as much as he loves baseball, music and gourmet food. In 2005, Dillon was diagnosed with Niemann-Pick Type C, which is a rare, devastating and always fatal disease with only 500 cases world wide.
The symptoms of this disease include enlarged spleen and liver, clumsiness and loss of muscle control, deterioration of speech, seizures, and progressive neurological and intellectual decline. Many children die before the age of 10, or within 5-10 years of the diagnosis.
With your generosity the National Niemann-Pick Disease Foundation, Inc. can achieve the necessary funding for critical research in hope of a successful treatment in time to spare Dillon and other children from the devastating effects of this fatal disease that robs them of their most precious gift – life.
 |
 |
Old Drug Offers New Hope ~ 04/02/2013
Urbana Boy Participates in Drug Trial for Rare Disorder
2012 Golf Tournament Registration Form
CBS Evening News Video
Mom Story: My Son has Niemann-Pick Disease
When Hope is Gone -- Saving Your Child
Upcoming Events Frederick Keys Benefit on August 11 6th Annual Dillon Papier Charity Golf Tournament First Monday of each month -- eat at Foster's Grille and support the fight against NPD!! Nationals vs Mets Baseball Game with NICHD Bowie Baysox Game | Bowling for Dillon B'Nai Israel Sisterhood Spring Festival Cornhole for a Cause |
Frederick Dream Dinners Proceeds benefit the Thank you for your generous support in this battle for the lives of precious children including Dillon and many others! |
 |
Donate Here |
READ ME FIRST When making a donation |
|
|
| To donate via check or money order, please click here. |
